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As I mentioned earlier, I think I may finally have an answer to my
fever, elevated ESR, small bowel inflammation, etc (ankylosing spondylitis).
If this dx is confirmed, I'll probably be put on some antimicrobial
chemotherapy agents like methotrexate, cyclosporine, Remicade, Embrel or
one of the others. I've read about them, but what are the side effects
like in real life? Sme of them are said to cause hair loss - true? How
much? Anything I should know? If I have AS, I'm having a 'flair' now, and would gladly take *anything*. It's a little exciting to think that soon I could be free of
the fevers, pain, GI unpleasantness and fatigue! If this is the right dx, it akes me reflect on just how contrary I am.
Like sleep apnea, AS is more common in men, and my kidney disease, FSGS,
is found primarily in African-American men. Last I checked, I'm still a
white chick...
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-What a relief, just to know. Cyclosporine can cause elevations in
lipid profile, diabetes, tremors, night sweats, hypertension, and gum
overgrowth. However, it causes hair to grow more thick, one good
thing. All of the above happened to me except for the diabetes. Stay
away from that one if you can. Methotrexate has cause stomach
different for my dad, but that's his only complaint. -I've been on methotrexate for the last two and a half years (was supposed to
be only nine months) but it's been working so much better than anything
else, it's hard to get off of it.
I lost a bit of hair when I started the treatment, but I think it has more
to do with the lupus flaring up than anything else - since the dosage is
relatively low compared to the doses cancer patients get when they lose
their hair. I'm pretty confident that my hair loss was associated with the
flare up, which still goes up and down. But, i can't be certain...and I do
have a friend that lost a bit more hair and attributed it to the
methotrexate. I found it a good opportunity to try out having some short
hairdos...finally these last few months I've been able to grow my hair out.
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